Reporting of Aggregated Data
One of the five key Challenges to Integrated Surveillance.
Problem
Many surveillance systems only provide summaries or aggregated results, which prevents re-analysis or adaptation to different research questions.
Why This Matters
An ideal AMR dataset should contain data of high enough resolution to perform AMR emergence and transmission tracking in space and time. For human isolate-level data, this ideally includes demographics, clinical data, and location.
Currently, the most feasible reporting approach is at the nationally aggregated level - summaries reported by each country’s coordinating bodies. While this avoids GDPR complications (see Legal and Ethical Considerations), it limits the analytical possibilities.
Proposed Solution
- Develop systems allowing access to raw data alongside aggregated summaries
- Build on existing systems with modest adaptations to feed into an integrated platform
- Develop a regulatory framework enabling access to both summaries and raw anonymised data
- Establish a joint secure platform for collected data
Benefit
Enables flexible analysis, improves transparency, and allows integration across datasets and countries.